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20. Rett Syndrome Research Trust
Trumbull, Connecticut

Overview:
Rett Syndrome Research Trust (RSRT) is a nonprofit research organization exclusively focused on the development of treatments and cures for Rett Syndrome, one the most physically disabling of the autism spectrum disorders.

Primarily affecting little girls, Rett often strikes just after they have learned to walk and say a few words, and begins to drag their development backward.

Rett Syndrome may become the first reversible childhood neurological disorder. It is the goal of the Trust to deliver clinical trials of a novel treatment strategy that addresses the underlying genetic defect within five years.

To achieve this goal, RSRT ventures beyond the traditional scope of disease-specific foundations. The Trust will operate as a virtual biotechnology company outsourcing the various drug development steps to the best-qualified academic institutions or contract research organizations.

For more info: www.reverserett.org


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